The OMSLife Foundation is a 501(c)(3) nonprofit organization founded in 2012 dedicated to educate people around the world about Opsoclonus Myoclonus Syndrome and raise funds for the research and cure of this disease.
The OMSLife Foundation, P.O. BOX 2899, Cypress, TX 77410
January 10, 2014
The OMSlife Foundation is pleased to announce the results of our fifth annual OMS Teddy Bear Drive. Local coordinators distributed over 6,000 new teddy bears and toys to children in 45 hospitals across the country to raise awareness of OMS. Also, we raised over $40,000 for OMS awareness and research.
The 2013 grant recipients were:
•Dr. Michael Pranzatelli, The National Pediatric Myoclonus Center, Springfield, Illinois.
•Dr. Wendy Mitchell, Children's Hospital Los Angeles
Congratulations to each of our 2013 grant recipients. A special thank you the many teddy bear coordinators across the country and to the generous contributions from everyone who participated in our 2013 OMS Teddy Bear Drive!
January 27, 2013
The OMSlife Foundation is pleased to announce the results of our fourth annual OMS Teddy Bear Drive. Local coordinators distributed over 3,300 new teddy bears and toys to children in 32 hospitals across the country to raise awareness of OMS. Also, our goal to raise $25,000 for OMS research was exceeded as we collected $43,800 from 280 personal and corporate donors.
As communicated previously, the 2012 grant recipients were:
Each grant recipient received $14,600 for OMS research and related work. Boston Children's Hospital notified us that a philanthropic match was offered on our donation, and our board of directors has approved, a matching gift on a one for one basis, raising the total for their OMS research to $29,200.
Congratulations to each of our 2012 grant recipients. A special thank you the many teddy bear coordinators across the country and to the generous contributions from everyone who participated in our 2012 OMS Teddy Bear Drive!
September 10, 2012
Student aims to find cure for disease, a teddy bear at a time - Kentucky Kernal
August 9, 2012
The OMSlife Foundation is pleased to announce that we are now a 501(C)(3) organization eligible for tax deductible donations. The OMSlife Foundation was founded with a mission to raise OMS awareness in the general public and the medical community, to raise funds for OMS research, and to assist families in their battle of OMS.
The board of directors of The OMSlife Foundation has elected to direct the monetary proceeds collected from the Fourth Annual OMS Teddy Bear Drive to the following recipients:
We applaud the contributions that these three individuals and their organizations have done to progress the collaborative efforts in research, treatment, and life skills for our OMS warriors. Congratulations to the recipients of the 2012 recipients of the Annual OMS Teddy Bear Drive Fundraiser.